Product Description
The book that thousands of new parents and professionals have turned to as their first source of information on Down syndrome.This classic guide provides new parents with straightforward and compassionate advice and insight.It helps families become more confident in their ability to cope, to learn about their child's development, to know where to seek help, and to advocate for their child.This second edition, written by the same knowledgeable parents and professionals who contributed to the first edition, covers these important areas:diagnosis; medical concerns & treatment; coping with your emotions; daily care; family life; early intervention; special education; and legal rights.The satisfying blend of practical information and emotional support make BABIES WITH DOWN SYNDROME the guide new families will want to refer to first. ... Read more

Customer Reviews (29)

Great Book!
I have read a lot of books on Down Syndrome. This one was the one the hospital gave me when my son with discharged. I have ready more informed book, but this was the perfect book to start with. It had answers to all the questions I could think of, answered them, and didn't overload me. Taking in everything was enough and it felt like this book understood that.

Good overall rundown of children with DS
This is overall, a good, informative resource, providing pretty much all you need to know to have a good understanding of Down Syndrome. The only reason I didn't give it 5 stars, is I think it presents more of the negative aspects than positive. For a new mother, it can be a little overwhelming if this is the first bookyou read. I would say it is a must have, for it is extremely informative. But, also make sure to read "Gifts" too, as that will present all the positive aspects of having a child with Down Syndrome as well.

Babies with Down Syndrome
I never checked the publishing date.It was older than I thought, and I know the have new information on treatment of children born with Down Syndrome

Not the current edition!
This WAS a great book, but it's not the most recent edition. Not sure why Amazon is still selling it and why people are still reviewing it. The book's been replaced by the 3rd edition, published in 2008 by the same company--Woodbine House (editor's name is Skallerup). The new edition is completely updated and almost all of the contributors are parents of people with Down syndrome (4 of the contributors are the same as in this out-of-print edition, plus there are 4 new ones, including Sue Buckley and Len Leshin). So, don't buy this out-of-print edition, buy the new one!

This book contains facts and VERY NEGATIVE opinions!!!
I hope this isn't the first book you receive when you give birth to a DS baby like I did (and was given this book right off the bat) Talk about scaring a parent to death! It does give good facts about what DS is and the genetic facts about it, but other than that, it lists every possible medical condition that COULD go wrong with your baby (do parents of non-DS kids get handed such a book at birth, spouting the statistics that their baby has odds of dying of such-and-such and according to statistics, their baby has a great chance of getting killed by a drunk driver in their teens? I THINK NOT!!) So why is it okay to give such a book to a brand new parent of a DS child, one that is filled with every possible negative scenario and negative parental reaction, rather than a book filled with what DS babies and kids CAN do and ACHIEVE and give the new parent a sense of HOPE and APPRECIATION for their new little wonder! A terrible first book to give to a new parent of a DS baby..........a much better choice would be "Vitamin Therapy and Down Syndrome", a book that gives hope and success stories of DS kids and their families! ... Read more

Product Description
"Alzheimer's Disease and Dementia in Down Syndrome and Intellectual Disabilities" reviews the biological aspects of Alzheimer's Disease and dementia, particularly in older adults with Down Syndrome. It brings together findings from research and clinical practice with a multi-disciplinary perspective, and is unique in combining information on Alzheimer's Disease and its associated dementia in the general population with that of adults with intellectual disabilities. This research is invaluable to medical professionals who provide clinical care to people with Down Syndrome and other intellectual disabilities. It is also vital for academics researching ageing issues in people with Down Syndrome. ... Read more

Customer Reviews (1)

Highly Recommended
I highly recommend this book for anyone working with persons with Intellectual Disabilities, and expecially for those who have the opportunity to work with individuals with Down Syndrome.It gives good overall information on Down Syndrome and Dementia while remaining concise and very reader-friendly. In addition, the author is cited frequently in current literature pertaining to Intellectual Disabilities and Dementia. It's a great resource. ... Read more

Product Description
Since their initial shock at their daughter's disability, Karina's parents have experienced the challenges and joys of raising a child with special needs. Gun Dolva and Rodney Potter have taken advantage of available services and programmes - and their own imaginations - to devise stimulating activities to assist her to develop to her full potential. They aim to provide her with every opportunity to fully participate in the community. This is the account of Karina's first six years, as told by Cheryl Rogers. It aims to be a valuable resource for the families of Down Syndrome children, teachers and disability service workers. ... Read more

Customer Reviews (2)

Karina Has Down Syndrome
I rate this book a 5-star review!This goes to show how a family who has a Down Syndrome child is determined to help Karina develop to her fullest potential in spite of her challenge with Down Syndrome.

SPECIAL EDUCATION TEACHERS...GET OUT YOUR CREDIT CARD!
This book helped me to realize that there are many parents out there who are faced with life changing news everyday.Through reading the experiences in this book, it showed me the different emotions wrapped up in families with disabilities.I am studying to be a special education teacher, and I know that this book will be a reference for me when relating to the parents of my students.If you are a special educator, or anyone whose life has been touched by a child with a disability, you MUST purchase this book! ... Read more

Product Description
This practical handbook offers advice on strategies for meeting the special educational needs of children with Down's syndrome in mainstream schools. The aim is to increase the confidence of support assistants, teachers, SENCOs and senior managers in both primary and secondary schools in providing a quality education for these pupils, while using scarce resources to best effect.

The author offers an introduction to the particular characteristics of children with Down's syndrome and their impact on learning and behaviour. She considers the benefits of inclusive education and the most effective ways in which the National Curriculum can be made accessible. She also examines working with the whole-school, parents and outside agencies, as well as providing practical resources such as photocopiable proformas and checklists, materials for INSET in schools and support services and a list of reading materials. ... Read more

Customer Reviews (3)

Ignorant
You would think an author would know that it is Down Sydrome-not Down's Syndrome. It kind of discredits her intelligence.

everyone needs this one
the cover of this book is actually pink so when you hear people talk about the pink book - this is it. it is an absolute must have for anyone with a DS child trying to get them in a mainstream classroom. it has all the concrete evidence needed to force the issue with the school as well as a ton of practical suggestions and examples of what needs to be done to make it work. i take this book to every IEP meeting we have.

Useful
This is a good book about including students with Down syndrome in regular classes. There are references to research. It covers both common problems and solutions. Even though the book is British, I think it's very useful for me in Sweden. ... Read more

Product Description

Off-the-shelf support containing all the vital information practitioners need to know about Down's Syndrome, this book includes

* Definition of Down's Syndrome and its educational implications

* Teaching strategies to meet different learning styles

* Advice on managing staff

Product Description
The authors of the bestselling Mental Wellness in Adults with Down Syndrome turn their attention to the physical health of teens and adults with Down syndrome.

Drs. Chicoine and McGuire provide invaluable insight into what health problems are more common in their patients, and how medical issues can present differently in people with Down syndrome. In a clear, empathetic style, they discuss how to promote a healthy lifestyle to prevent problems, and how to recognize health problems early on to ensure appropriate care and the best outcome. THE GUIDE TO GOOD HEALTH is a resource families and caregivers can refer to over and over again, whether it s to find strategies to get a teen or adult to cooperate with treatment, or to consider if a symptom is being misdiagnosed or misunderstood.

Key topics include: -Characteristics of Down syndrome that can affect health care; -More commonly occurring medical issues; -The connection between mental & physical health; -Dealing with hospitalizations; -Long term health and well being throughout the lifespan; -Advance directives and end of life issues; -Specific medical conditions (ranging from skin and nail problems, eye, nose and throat issues, and cardiac concerns, to thyroid disorder, diabetes, Alzheimer disease, and sleep problems).

For each condition, the authors discuss symptoms, the diagnostic process, and treatment options. Real-life examples from the authors decades of experience help to illustrate how some medical problems can mistakenly be attributed to characteristics of Down syndrome. As the average person with Down syndrome lives considerably longer than in previous generations, THE GUIDE TO GOOD HEALTH can also help families know what to expect during the aging process. ... Read more

Product Description
An exceptional memoir that provides emotional insight and practical advice.

It's like planning a trip to Italy, only to get off the plane and discover you're actually in Holland. You need a new road map, and fast...

When Jennifer Groneberg and her husband learned they'd be having twin boys, their main concern was whether they'd need an addition on their house. Then, five days after Avery and Bennett were born, Avery was diagnosed with Down syndrome.

Here, Jennifer shares the story of what followed. She dealt with doctors-some who helped, and some who were disrespectful or even dangerous. She saw some relationships in her life grow stronger, while severing ties with people who proved unsupportive. And she continues to struggle to find balance in the hardships and joys of raising a child with special needs. This book is a resource, a companion for parents, and above all, a story of the love between a mother and her son-as she learns that Avery is exactly the child she never knew she wanted. ... Read more

Customer Reviews (31)

A really excellent book
I really enjoyed this book. Jennifer not only covered her personal story -- and Avery's -- but also told us about learning to manage family life with three small children, about Avery's different therapies and what they were intended to accomplish. I particularly appreciated the parts where she described -how- the therapist moved Avery on the big ball and -how- Jennifer and the therapist began teaching Avery to sign. I also loved the coffee-container toy and the recipe for lemon chicken!

There's an extensive list of books for adults, books for older and younger children (both children with DS and brothers and sisters), DVDs, websites, national organizations....it is an extremely helpful list of resources, not to mention the addition of the touching essay "Welcome to Holland" by Emily Perl Kingsley. There are also chapter notes and a glossary of commonly used terms that were largely new to me. These were very thoughtful and helpful inclusions.

"Road Map to Holland" is a really well-written book. It's hard to read sometimes, it really is. The emotions expressed are so raw and painful. But through all the pain, there is a thread of hope that begins to run through Jennifer's narrative as she and Tom struggle through Avery's diagnosis and finding help for him, working with him, loving him. Their courage is both humbling and inspiring.

I originally checked this book out of the public library because of my new godson, who was diagnosed with DS. I thought it would help me understand some fundamentals and then I'd return it, glad about the knowledge I'd gained. But now I've decided that I have to own a copy: I've found I simply can't return it. It means too much to me.

Do not buy
I did not like this book, I felt the author was all over the place.Save yourself time and money on this one.I did not like this book.

so helpful
I read this book while pregnant with my 4th child.I loved it.I just didn't know how applicable it would be.Although my child wasn't born with down syndrome she was born with a heart condition and a serious liver condition and I took such comfort in the honest writing of this book and could relate so well!I would recommend it to anyone, special needs child or not.

A valuable addition to the topic
There is no Down syndrome among my family or immediate friends, but Jennifer Graf Groneberg's book showed that EVERYONE is touched by Down syndrome. It put a personal face on what before was just a "nightmare diagnosis," one you don't want to have happen to you.

I appreciated Jennifer's honesty and openness, with her fears and struggles as well as her triumphs. I loved the emphasis on what her boys had in common rather than the ways in which Avery was so different.

The only criticism is that I would have liked to know what her life was like BEFORE one of her twins was diagnosed... it was hard to relate to the "after" when I didn't know how much change it brought to her life.

Roadmap to Holland
Wonderfully written story!! Jennifer shares her true feelings from the moment she found out one of her premature twins was born with Down Syndrome. She takes us through those first two difficult years on her journey "to Holland". As a parent of a child with DS,I could relate to many of her experiences and feellings. This book is a must have for new parents of children with DS. I couldn't put the book down and shed many a tear as I walked this path with her. ... Read more

Product Description

Customer Reviews (23)

the year my son and I were born
excellent book. It all hit home, was very easy to relate to the characters and the struggles they faced with have a child with down syndrome

True, but disconcerting and disturbing
I feel that I have to admire Kathryn Lynard Soper for her searing honesty in this book, but I was also puzzled because I thought it was going to be a book about her son, born ten weeks prematurely and diagnosed with Down syndrome. Instead, it was more a book about Soper's largely untreated post-partum depression.

The tone of the book is very grim. Real? Yes. True? Yes. But unforgivingly stark. It was very painful wrestling Soper's demons with her, particularly the one where that tiny bit of her wished that Thomas would die. She depicted herself as an uncaring, overwhelmed, buried-in-grief mother, so that when I got to the part where she said she loved Thomas so much and couldn't imagine life without him, I was startled. We'd previously seen her hiding pictures of her son in which he looked "retarded," voicing her dislike of contact with any adult or child who was differently abled, expressing anger over dealing with Thomas's oxygen tank and hearing aids, embarrassment at taking him out in public....it was difficult to make the transition from all that negative energy to the positive aspect of mother-love.

A little more than halfway through the book, she realized her need to seek help for her post-partum depression, although she'd previously been set against being a "cheater" and weakly succumbing to medication. That was both tragic and exasperating. Upsetting. I suppose it could be taken as a cautionary tale, a lesson for other women who might find themselves in the same state of mind after childbirth, whether prematurity or a frightening diagnosis is an issue or not.

Soper's medication begins to pull her out of despair in the very last part of the book and her return to herself marks the beginning of hope in her family, so things end well. But on the whole, I'm sorry I read this book. I wanted a book about coping with a baby with Down syndrome, but I feel like what I got was a long tale of inwardly-turned anger and self-indulgence. It was very difficult to read.

I recommend Road Map to Holland: How I Found My Way Through My Son's First Two Years With Down Syndrome instead. It is still very true and real - butterflies and unicorns don't spring out of the pages -- but not so horribly depressing.

the most-often borrowed book in my library
A couple of days ago, a friend came over to my house and asked if she could borrow a few books. I took her through my unpacked and accessible stash and handed her this as a possibility. "Oh, this one is really good," I said. "Is it just good because she's a friend of yours?" she asked. "No, it's legitimately good," I assured her. She took it home with her.

I'm interested to hear what my friend has to say, but I really do think that Kathy Soper's memoir is legitimately good, excellent even, and not just because she's a friend, a mentor, and the Editor-in-Chief at Segullah. I devoured The Year My Son and I Were Born, finishing it in less than 24 hours, and although I don't have a child with Down Syndrome, there were so many parts of the book that resonated with me. Kathy writes with such honesty about being an overachiever and wanting her children to follow in her footsteps, and that's something I can totally identify with. I want my children to reflect well on me, sometimes to their detriment. Kathy's memoir inspired me to try to love my children for who they are and help them become their best selves, even if their best self isn't reflective of the self I want them to become.

a powerful book
When my own son was born with Down syndrome, I ordered every book I could find on the subject. I was searching for a story, a connection, that would help me make sense of my own feelings.I found "Gifts", and found in those writings some comfort and recognition that I was not alone.That others had been through the shock, grief, and guilt I felt when I walked out of the hospital."The Year My Son and I Were Born" had not yet been released.When it was published some time later, I have to admit I didn't look at the book very closely, figuring I had read so much already, and it was unlikely that this story, the story of a woman who I thought was nothing like me, would be the book that I had been looking for.

I was totally wrong. A friend suggested I take a look, and I am grateful that she did.Kathryn Lynard Soper's writing draws you in, and her honest and sharp descriptions of her journey with her son Thomas in that first year were breathtaking.Even though her story is not the same as mine (her son spends time in the NICU, and needs oxygen tubes for the first few months), so many of the feelings and conversations she describes were painfully familiar to me.Her defensiveness in conversations with people who seem to pity her (or who express words that she interprets as pity-- she candidly admits the conflicting series of emotions that seem to run through many conversations with "well-meaning" friends and acquaintances).Her uncertainty and frustration in dealing with the medical professionals who are unable to provide real information to her, and yet expect her to make decisions about Thomas' medical care.Her tough examination of her own fears and prejudices.Her journey of patience and empathy, as she begins to assess the priorities and assumptions that had really framed her life to this point.Like Ms. Soper and many other new parents of children with Down syndrome or other special-needs, I had never really considered that I might have a child who would need anything "extra".My son was the first person I had met with Down syndrome.At the time, I felt that I had no friends who would understand what I was going through, or would be able to help me along the way."The Year My Son and I Were Born" is the friend I was looking for- the funny, sarcastic friend who says she's been there, it's ok to cry, and gives you hand to help you move forward.

I highly recommend it to others, and it's the first book I recommend to any new parent of a child with Down syndrome.(But I agree with other reviewers- it is likely to make you cry, wherever you are reading it, so if you're shy about that kind of thing keep it at home!).

THE CHANGE IN ME
THE CHANGE IN ME

I loved this book, which was superbly written, and affected me deeply.

It was at first difficult for me to read Kathryn Soper's book because I confess to having lived a life all-too-focused on intellectual prowess.I had to put the book down occasionally to take a break from my empathy with Kathryn's despair and depression.The worst situation I could imagine as a young wife was to bear a less than brilliant child.Like Soper, I squirmed in the presence of children with physical or mental handicaps, wanting, but not knowing how to interact with them, wishing simply to escape the dilemma, and ashamed of my negative or ambivalent feelings.

But since reading her book, I've felt a profound change coming over myself.A week afterward, I met a Down Syndrom teenager at our neighborhood gym, valiantly trying to work-out on the machines while she waited for her mother.Feeling a new understanding and connection, I actually took pleasure in showing her how to adjust and work on the equipment.The girl was open and delighted at my friendliness, rewarding me with big smiles and genuine efforts in trying out my suggestions.And I didn't feel weirded-out!

I think that I realize, too, that I have had my priorities in the wrong places, valuing that which was externally impressive, but of far less worth than the frank love and enthusiasm with which DS people usually welcome life.

Soper says she doesn't think God has any hand in her bearing a DS child.I don't agree at all!Doesn't she see the vast changes in her outlook on life?Doesn't she see the whole new world of understanding that opened to her, and the leaps of service to others that have come forth from her own experiences?My daughter, a fellow-writer with Katherine on a web-based magazine, has told me of the amazing strides Kathryn has taken in helping other parents understand and adjust to having a DS child.She has collected hundreds of stories and published them in the book, "GIFTS," offering it free to thousands of parents and doctors of DS children.She has spoken at national conferences focused on understanding, parenting, and teaching the mentally and physically handicapped. And she thinks God had no hand in choosing her? Kathryn, you have done a magnificent work that will touch hundreds of thousands of lives!And I think God chose YOU for that purpose, knowing YOU would not settle into a corner and simply learn to endure, but lift up a banner and carry it forward.

I thank you for being bold and proactive enough to bring forth your own understanding to help enlighten the world.

My only sorrow in the book was that Soper's overriding despair was barely relieved until the last fourth of her story.That's how she felt, and I'm glad for her honesty, though it was painful.But I would have enjoyed more description of the growth of love and understanding in herself, her son, her family, and her community.Maybe when she does a reprint she can revise, and add an "Epilogue" update of what has happened since that first year. ... Read more

Product Description
Windows Into Heaven brings the stories of 30 different families that have been blessed by having someone with Down syndrome in their lives together to celebrate their amazing experiences.These stories give the reader positive insight into what someone with an extra chromosome can bring into their life, whether that reader be a new/expecting parent of a child with Down syndrome, someone seeking additional insight into Down syndrome all that Down syndrome is, or a person that is simply looking for uplifting and inspirational stories.Though children and adults with Down syndrome have intellectual disabilities, this books highlights the endless joys and possibilities they bring to the lives they touch. ... Read more

Customer Reviews (4)

From an OB/GYN
This book is a Godsend for my practice where we deliver Down Syndrome babies. I give it to all of the parents who have a Down Syndrome baby. It's always a little scary for parents encountering it for the first time and "Windows Into Heaven" helps parents to understand that, first, they are not alone, and second, they have been given a gift few will receive in this lifetime. Delightful book you should have if you've been touched by Down Syndrome.

Uplifting short stories
This was an inspiring and uplifting collection of personal experiences.It gave me encouragement and that "I've been there too" feeling.I would recommend it to families and friends who are involved with a child with Down Syndrome.It is gentle enough to reach out to those who may feel unsure how to relate to a new family member with Down Syndrome.

not so great
My wife really wanted to read this book, so I bought it.After reading it, I asked her what she thought.She was unimpressed.Being the parents of a child with Down Syndrome we have read lots of books on the topic and this one pales in comparison to almost all of the others, according to my wife.

Feel-good stories for everyone
I love this book because it takes a wide view, including stories from moms, dads, and grandparents about babies/kids/young adults/adults with Down syndrome.One theme ties us all together--our deep, abiding appreciation of the way Down syndrome has touched our lives. ... Read more

Product Description
A ". . . fine book to introduce physical and mental handicaps" (Canadian Materials). "This warm family story, lighted by color photos of Jai's busy, happy life, should be an inspiration to any reader."--Emergency Librarian. Full color. ... Read more

Customer Reviews (3)

Very cute!
An outpouring of beautiful emotions even for a very short read! With great pictures that capture true love, patience and understanding.

Great!
This is a wonderful book told from a kid's perspective!Great!We have 2 kids with Down syndrome, so this subject is very dear to our hearts.It even discusses the use or misuse of the word retarded.Loved it!

Nice pictures, assumptions questionable
My daughter loves the pictures of little Jai, but the text is too detailed for young readers on one page, appropriate on all the others.My biggest concern is the line "there is nothing we can do to make Down syndrome go away" -- which teaches siblings the assumption that it should.My son has Down syndrome and I wouldn't change him for anything, nor do I wanthis sisters to think that we would prefer him to be someone else. ... Read more

Customer Reviews (1)

medical treatment of down syndrome and genetic diseases
This booked was recommended to me by a pharmacist friend of my husband.Heavy going to say the least but I found some of his studies quite interesting.It spans over 30-40 years of his work and how he treated down syndrome children with a coctail of vitamins and minerals.This book was revised in 1985 ,My thoughts are that with good nutritional diet and excercise anyone can reach there potential .I have lent the book to a friend and even though she is reading it she finds some of the language offensive and hard going.If like me you would like to give your child the best do read it but don't expect a miracle. ... Read more

Product Description
An expert shares her knowledge of speech and language development in children and adolescents with Down syndrome.A wealth of accessible information and advice, plus practical home activities. ... Read more

Customer Reviews (3)

Great book
A great book that really gives you step by step ideas on how to encourage language.You can apply these ideas to children with Down Syndrome, as well as typically developing children with language delays.

A great resource for parents and teachers
Children with Down Syndrome are often delayed in developing speech but can compensate for this delay by using sign language and other skills in a technique called Total Communication. This guide provides a wealth of information about speech and language development in children with Down syndrome. Parents learn what to expect as communication skills progress from infancy through early adolescence, how Down syndrome can affect those skills, and what they can do to maximize their child's potential in this crucial area of development. This book was recommended by our son's speech therapist.

a guide forparents (Topics in Down Syndrome
I think this is a wonderful book that not only explains whatDown Syndrome is but how beautiful it is and how special it is . Ibelieve that everyone should get this book for someone who has or knows a parent that cares for a down syndrome baby. ... Read more

Product Description
Highly acclaimed when first published, this book has become an accepted introductory work for professionals and new parents. The author, a leading authority on Down Syndrome, has updated and expanded his practical and sympathetic book to take account of recent advances in educational and developmental techniques and improvements in medical care. Besides information to help parents and practitioners understand the characteristics of the condition, this book covers the latest methods of treatment, advice on care of both the young child and the older person, the importance of -and sources for-professional guidance, and details of prenatal testing. ... Read more

Customer Reviews (4)

understanding down syndrome
I really like this book. I have a child with down syndrome. This was a warmer book and was not as clinical as most of the the other books I've read. I put it in gift baskets for new moms that contact me who have recently had a child with down syndrome.

Not terribly encouraging....
I read this book shortly after my son, who has DS, was born.Maybe I should have waited a while!I found it kind of grim and frightening.It does contain lots of good medical advice, but I think that perhaps Karen Stray Gunderson's book is the best book to start reading.I also like the Pueschel book.Perhaps because these individuals have children with DS, whereas Cliff Cunningham does not, the books are written in a more sensitive fashion.As a new parent just learning about DS, we need encouragement!

An excellent second book
This book is an excellent introduction to Down syndrome. The author of this book is British so it does not concentrate on US law as much as the book "Babies With Down Syndrome". This is the book to read after you have had a chance to catch your breath and are ready to learn some of the practical issues of raising a child with DS.

Understanding Down syndrome
I recently did a presentation for my biology class on Down syndrome.I found this book to be very helpful.It was very informative and offered much information.Some information of which was not found in other sources.This book offers a lot of information on Down syndrome, as well as what to expect from an individual with Down sydrome and how to care for them. ... Read more

Product Description
(2006 Independent Publishers Book Awards:Honorable Mention in Autobiography/Memoir Category)(2005 ForeWord Magazine's Book of the Year Award:Finalist in Autobiography/Memoir Category)Like many parents, Greg Palmer worries about his son's future.But his son Ned's last year of high school raises concerns and anxieties for him that most parents don't experience.Ned has Down syndrome; when high school ends for him, school is out forever.The questions loom: What's next?How will Ned negotiate the world without the structure of school?Will he find a rewarding job in something other than food service?To help him sort out these questions and document his son's transition from high school to work, Palmer, an award-winning writer and producer of PBS documentaries, keeps a journal that s the basis of this thoughtful and entertaining book.Ned's talents and interests in poetry, music, and history help him connect with other travelers on a nautical excursion around the British Isles, while his father watches from a distance. The years Palmer and his wife nurtured Ned's interests seem to pay off when Ned shares a favorite poem with a stranger or wins "Employee of the Month." Gratified and a little surprised at how easily Ned sometimes lives by his wits, Palmer also acknowledges the parenting challenges: Ned has some gaps in self-help skills; rarely considers eating anything but peeled wieners for breakfast; and needs help knowing when to curb his passions, such as bombarding people with unsolicited accounts of his family genealogy. Preparing Ned for the working world teaching him to handle money and public transportation, and finding him a job is both amusing and stressful.Palmer wisely stays out of the way when Ned is working happily in the same office and he recognizes the value of good job coaching when his son is lucky enough to get it.But it's trickier business when Ned loses money and skips the bus.Worry over Ned's vulnerabilities leads to discussing what it means to have Down syndrome and, Palmer hopes, offering him a dose of reality. ADVENTURES IN THE MAINSTREAM is a lively and insightful account allowingreaders to enjoy Ned's strengths and foibles just as his father does.This personal chronicle also gives us a better understanding of what's involved for parent and child in a young man's journey from adolescence toward adulthood and greater independence. ... Read more

Customer Reviews (4)

Denny descendent delivers...
I first read about Greg and Ned in Pacific Magazine in the Sunday Seattle Times.It was a brief but intriguing view into Greg and Ned's relationship and Ned's move into adulthood and the "mainstream".Both Greg and Ned, (father and son)seemed to be witty, talented, smart men learning to deal with each other and life as they moved into the next chapter of their lives.I wanted to know more, so I got the book.

I could not put the book down.Greg is an honest, engaging writer.He captures the anecdotes of his life, his son and hisfamily with warmth, respect and love.In this book Greg shares his hopes and fears for his son.He also shares his personal philosophies and pet peeves - I enjoyed that part immensely and did not find it distracting.

Ned is by all accounts an incredible human being.He has his issues just like the rest of us. He also possesses certain gifts - incredible memory, love of music, and passion for history.

It is a bittersweet experience for parents as their children leave the nest and find their place in the world.This book chronicles the good and bad of that experience.This is an excellent book and I recommend it to everyone who enjoys smart writing and a well-told story about family relationships.

Too many unrelated personal biases
The first section of the book is very entertaining.From there, the action slows down. The content really drags towards the end.As the parent of a child with DS, I can relate to much of the writers comments, however, the author includes way too much personal bias and opinions unrelated to his son in the areas of politics, religion, public television, etc in his own separate experiences.The book would have been much better without them.

Funny and Informative!
An excellent true story of what it's like to be facing your child's pending adulthood when the child happens to have Down Syndrome.Extremely well-written, funny and informative.A good bet for families who know someone with Down Syndrome - which is just about everyone!!

Must read for any parent who has a child with a disability
I finished reading Greg's book and immediately sent him an email thanking him for his honesty in depicting the hopes, fears, concerns, and joy that we, as parents of children with disabilities, have in our day to day living.

As the parent of Daniel, a 7 year old with Down syndrome, my husband and I worry about if we are doing the right things, if we are teaching the right things, how to prepare him for life after he turns 21 and ages out of the educational system.As Greg's book depicts-- sometimes we do a good job on some things, sometimes we do a bad job on some things-- but we are human and don't have the magic key when it comes to teaching a child with a disability what to do, what not to do, what to learn, etc.

Loved the ending as I am a huge fan of "Inside The Actors Studio" and made us realize that our job is to prepare our child to the best of our(and their) ability and KNOW that someone will watch out for them when we are gone and they are on their own.

Loved Greg's comments about being sensitive to 'slights'(perceived or real) and other things that we, as parents, become sensitive to throughout our child's life.He tells it like it is-- the good and the bad and doesn't sugar coat things because while there are good things about having a child with a disability, there are also bad things that alot of books won't talk about.

Would definitely recommend this to any parent who had a child with a disability-- or anyone working in the field with people with disabilities because it gives a unique perspective. ... Read more

Customer Reviews (3)

An incisive, well written and extremely upbeat book.
This book is a "must read" for parents of Down Syndromechildren. Having close friends who had a sister with Down Syndrome, I sawthe difficulties and the joy of parenting these children. However, I reallyknew little about it until I read this book. Dr Unruh not only gives aclear description of the causes or biological reasons for this problem inclear laymans terms, but more importantly, he gives a positive upliftingview of how parents can, and, do deal with this problem. Clearly, this is abook written by someone who has a great love for these children andinstills a great hope and sense of purpose to parents as well. It iswonderfully done. A very good read. Kudos to Dr Unruh!

The best I have read. Positive and full of good ideas.
As a parent, this book has filled me with objective optomism. It is the only book I have foundthat has given me a clear understanding of the problem as well as some refreshing ideas as to what parents can do to help. I congradulate Dr. Unruh for his straight talk and for sharing his vast experience with those of us who need good advice.

A book that is very harmful to parents of Down children.
If you are the father or mother of a child with Down Syndrome, stay away from this book. The title is misleading, it has nothing to do with "successful parenting of children with Down syndrome". It is just a technical book that fits in the "doom and gloom category". It is very discouraging for any parent to read a text so overly pessimistic.The living conditions of Down children are improving everywhere. Unfortunately, author John Unruh (Ph.D.) doesn't like good news. ... Read more

Product Description
Description in English of the Spanish Edition...

Babies with Down Syndrome, the trustworthy guide which has benefited thousands of families since it was first published in 1985, is completely revised and updated in a new, third edition. Covering the best practices for raising and caring for children with Down syndrome through age five, this book is invaluable to new parents who have welcomed a baby with Down syndrome into their lives.

This new edition incorporates the latest scientific, medical, educational research, and practical information available, as well as parents suggestions and feedback. Existing chapters have been revised, some completely rewritten by new authors, and in keeping with its parent-friendly reputation, most of the book s contributors are parents of children with Down syndrome. Chapters cover:

What Is Down Syndrome?: A primer on the causes, characteristics, and diagnosis, including the latest information on genetics and prenatal testing;

Adjusting to Your Baby: Advice from an experienced mother on coping with common emotions and announcing the news to friends and family;

Medical Concerns & Treatments: An overview of possible health issues including celiac disease, sleep apnea, diabetes, reflux, and skin problems, with an emphasis on detecting signs early for needed treatment;

Daily Care: The gamut of care from feeding to bathing, with expanded information about toilet training;

Family Life: The impact on siblings and couples, discipline issues, and new material to help everyone understand that a child s behavior is a form of communication;

Development & Learning: Expectations about development plus new material on variability in development, learning styles, using reading to develop language, memory strengths and weaknesses, and using play to encourage learning;

Early Intervention: An overview of services and therapies for babies & toddlers with new information on the transdisciplinary approach, providing services in the natural environment, transitioning to preschool, and common questions & answers;

Legal Rights & Financial Issues: Explains your child s educational and legal rights, and financial information, including the latest on federal education and civil rights laws, sources of financial assistance, health insurance, trusts, and guardianship.

Full of new photos, parent statements, updated and expanded resources and reading lists, and a reprint of the inspiring essay, Welcome to Holland, this guide is everything parents need to build a bright and healthy future for their child with Down syndrome. ... Read more

Product Description
Combining medical knowledge with common sense, this handbook offers help and advice to all parents and caregivers of children with Down’s Syndrome, written by a doctor and father of a Downs Syndrome child in association with the Down’s Syndrome Association in Britain. ... Read more

Product Description
Down Syndrome: A Promising Future, Together provides a comprehensive and up-to-date look at life with Down syndrome. Designed to meet the needs of parents and professionals alike, this edited volume addresses a variety of critical medical, developmental, educational, and vocational issues. It discusses current trends and presents the most recent update of the Health Care Guidelines for Individuals with Down Syndrome: Down Syndrome Preventative Medical Check List, which groups by age medical assessments and other important information. Also covered are the controversial and high-profile issues surrounding alternative and nonconventional therapies. The book concludes with the personal stories of young adults with Down syndrome, including an account by Chris Burke of the television series Life Goes On. Filled with practical advice from leading practitioners and advocates in the field, Down Syndrome: A Promising Future, Together is an essential reference for families of people with Down syndrome, for primary care physicians and other healthcare professionals, and for researchers, educators, social workers, early intervention workers, and students. ... Read more

Customer Reviews (2)

A collection of very interesting articles
This book is a collection of 34 articles summarizing many of the presentations at one of the recent NDSS annual conferences. The list of authors read like a who's who of the Down syndrome community. The book is divided into ten sections with articles ranging from advocacy to communication to education to the role of the family. The last section is made up of six articles written by people with Down syndrome. The book is very similar to the more recently published "Down Syndrome: Visions for the 21st Century," (ISBN: 0471418153). But this book is not replaced by the new edition. The articles in this book are different and are still very much worth reading. This isn't a book for a new parent and it certainly shouldn't be your first book on Down syndrome. There are other books such as "Babies with Down Syndrome," that would be a better choice as a first book. But this book does provide a lot of very useful and interesting information. Anyone interested in finding out what is going on in the world of Down syndrome will want to get a copy.

a must-have for all new and expecting parents of DS children
Book contains current info in every category a new parent wonders about. Answers questions before you even think to ask them. Especially poignant are the sections on advocacy and education. Chapters written by people withDS are very powerful. Can do without the section on genetics.A must read. ... Read more

Product Description
Expanding the scope and depth of the classic The Young Person with Down Syndrome, the authors haveincorporated significant scientific advances into their new volume on the issues that adolescents with thisdisability face. Written for health care professionals, psychologists, other developmental disabilitiespractitioners, educators, and parents, it covers biomedical concerns; behavioral, psychological, andpsychiatric challenges; and education, employment, recreation, community, and legal concerns.Contributions from leading experts lend experience and perspective to this multidisciplinary resource. ... Read more

Customer Reviews (1)

Adolescents With Down Syndrome: Toward a More Fulfilling Lif
I decided to read this book for a class I'm taking on the psychology of exceptional children.The book met all of the requirements made by my professor, and was written on a subject that I am very interested in. After reading the book and writing a review for my class, I can say thatthis book is a wonderful book for parents, educators, and professionals toread.I gained so much knowledge about working with adolescents who haveDown syndrome as well as adolescents who do not have disabilities.I amcurrently in college working on my B.A. in special education, and I havefour children.Three of my children are adolescents, and two of them havelearning disabilities.Due to my experience as a parent and a studentmajoring in special education, I can say that I learned more than I thoughtI would just from reading the title of this book. Before I read the book,I thought I would finish school and work with young children who havemental retardation, now I know that I want to work with children of allages.I would also like to have my home open to individuals who have Downsyndrome and would like to live away from their parents home.I would liketo set up an apartment within my home, so a person with Down syndrome couldlive there and be able to receive help from me if and when they need it. Byreading this book, I now know of so many different ways in which I can helpindividuals with Down syndrome.I am very excited to get started with mycareer, but more than that, I am ready to be involved in the lives ofindividuals who have Down syndrome.I checked this book out from thelibrary, but I want to buy it for myself, so I can go back to it as areference when I need it.I encourage anyone who is interested in workingwith adolescents with Down syndrome, parents who have children with Downsyndrome, educators (both regular and special), and health careprofessionals to read this book.You will be glad that you took the timeto find out more about these special individuals. ... Read more