Product Description
Cystic fibrosis (CF), also known as munoviscidosis, is a chronic genetic disease involving the dysfunction of the exocrine glands. This dysfunction is manifested as a deficiency in pancreatic enzymes, accumulation of mucous in airways, and excess salt in sweat. Cystic fibrosis was previously restricted to infancy and childhood but developments in medical treatment and therapy have extended survival considerably. This book includes within its scope research aimed at understanding the genetic linkage in cystic fibrosis, as well as improving the diagnosis and treatment of this disease in both children and adults. Leading-edge scientific research from throughout the world is presented. ... Read more

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In March 2001, the National Institutes of Health issued the following warning: "The number of Web sites offering health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading."Furthermore, because of the rapid increase in Internet-based information, many hours can be wasted searching, selecting, and printing.This book was created for medical professionals, students, and members of the general public who want to conduct medical research using the most advanced tools available and spending the least amount of time doing so. ... Read more

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This book brings together leading research material to provide a timely and informative text, explaining the major findings on the genetic origins of the disease together with implementation of treatment ... Read more

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This book has been created for parents who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells parents where and how to look for information covering virtually all topics related to cystic fibrosis (also fibrocystic disease of pancreas; mucosis; mucoviscidosis; pancreatic fibrosis), from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on cystic fibrosis. Given parents' increasing sophistication in using the Internet, abundant references to reliable Internet-based resources are provided throughout this sourcebook. Where possible, guidance is provided on how to obtain free-of-charge, primary research results as well as more detailed information via the Internet. E-book and electronic versions of this sourcebook are fully interactive with each of the Internet sites mentioned (clicking on a hyperlink automatically opens your browser to the site indicated). Hard-copy users of this sourcebook can type cited Web addresses directly into their browsers to obtain access to the corresponding sites. In addition to extensive references accessible via the Internet, chapters include glossaries of technical or uncommon terms. ... Read more

Product Description
This book is divided into three sections; the first is a guide forparents, with a section answering the bewildering questions that areoften asked. The second section covers life for young adults who haveCF and the practical and emotional difficulties faced by theirfamilies. The third section covers the prospects of new treatments forCF and the progress of research into gene therapy. The book offersreal hope in the face of life threatening illness. ... Read more

Customer Reviews (1)

inapropriate front cover
The inappropriate front page illustration would probably stop most people from looking further into the contents of the book. ... Read more

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Max Von Pettenkofer Institute, Munich, Germany.Overview of current international approaches to the diagnosis and management of cystic fibrosis, particularly respiratory manifestations. For pulmonologists and pediatricians. ... Read more

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Cystic Fibrosis: Methods and Protocols consolidates cutting-edge in vitro, cellular, and whole animal laboratory protocols into an indispensable resource. From electrophysiology and cell biology, to animal models and gene therapy, this comprehensive set of methods provides the step-by-step instructions needed for investigators to incorporate new approaches into their research programs. Specific protocols describe new techniques for diagnosis, in vitro methods for the expression and functional analysis of CFTR, novel biochemical and cellular systems to determine how mutations subvert CFTR function, and in vivo protocols to examine how CFTR dysfunction produce multisystem pathology in both human and animal models. ... Read more

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Explores the history, symptoms, diagnosis, and treatment of cystic fibrosis, reviews ongoing research, and discusses how to live with the incurable genetic disease that is often called "65 Roses." ... Read more

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The past 30 years have witnessed a dramatic improvement in life expectancy and quality of life for patients with cystic fibrosis. As a consequence, cystic fibrosis is no longer a paediatric disease. In Western Europe and North America 20% of patients are adults. Some adult cystic fibrosis patients have graduated from universities, some have jobs, some are married, and have children. Consequently, the spectrum of symptoms and complications of the basic disease changes. It is important that clinicians recognize the specifically adult related problems and that this knowledge is conveyed to their colleagues. At the same time, the progress of basic science such as genetics, physiology of membranes and immunology have rapidly progressed, all making an impact towards the best possible care for patients. These Proceedings of the 17th Working Group for Cystic Fibrosis provide a wealth of new information in the basic science and clinical treatment of cystic fibrosis. Chapters written by internationally established scientists are provided, which should prove to be of value for paediatricians, chest physicians, microbiologists, and scientists working with cystic fibrosis patients. ... Read more

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This publication is the outcome of several years' work on families caring for a child with cystic fibrosis (CF). Four case studies provide a portrayal of the efforts of parents to come to terms with the diagnosis and its implications, and trace the crisis points in the long haul of the illness. ... Read more

Product Description
This book has been created for parents who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells parents where and how to look for information covering virtually all topics related to cystic fibrosis (also Fibrocystic Disease of Pancreas; Mucosis; Mucoviscidosis; Pancreatic Fibrosis), from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on cystic fibrosis. Given parents' increasing sophistication in using the Internet, abundant references to reliable Internet-based resources are provided throughout this sourcebook. Where possible, guidance is provided on how to obtain free-of-charge, primary research results as well as more detailed information via the Internet. E-book and electronic versions of this sourcebook are fully interactive with each of the Internet sites mentioned (clicking on a hyperlink automatically opens your browser to the site indicated). Hard-copy users of this sourcebook can type cited Web addresses directly into their browsers to obtain access to the corresponding sites. In addition to extensive references accessible via the Internet, chapters include glossaries of technical or uncommon terms. ... Read more