21. ANAC - Acoustic Neuroma Links International acoustic neuroma Associations. acoustic neuroma Association Germany c/o Marianne Blancbois Am Karpfenteich 61 22339 Hamburg, Germany. http://www.anac.ca/links.htm

International Acoustic Neuroma Associations Acoustic Neuroma Association - United States 600 Peachtree Pkwy, Suite 108 Cumming, GA 30041-6899 Phone: (770) 205-8211 Fax: (770) 205-0239 email: anausa@aol.com Alison Frank, The Old School House, The Green, Old Buckenham Norfolk, United Kingdom, NR17 1RR The British Acoustic Neuroma Association Oak House, Ransom Wood Business Park Southwell Road West, Mansfield Nottinghamshire, England, NG21 0HJ tel: 01623 632143 fax: 01632 635313 Acoustic Neuroma Association - Australasia c/o Better Hearing Australia 5 High Street Prahran Victoria, Australia 3181 PHONE 03 9510 1577 A.H 03 9870 1803 03 9510 3499 TTY (DEAF) 03 9510 6076 FAX email: info@anaa.org.au

22. London Radiosurgical Centre - Gamma Knife Surgery, Brain Surgery, Brain Tumour Radiosurgery and Gamma Knife treatment for malignant or benign brain tumours, blood vessel abnormalities, AVMs, acoustic neuroma, trigeminal neuralgia and other brain disorders. Includes practice guides for physicians and treatment cost and procedure for patients. http://www.radiosurgery.co.uk

London Radiosurgical Centre - Gamma Knife Surgery, Brain Surgery, Brain Tumour Gamma Knife radiosurgery is a neurosurgical procedure that utilizes a specific dose of gamma radiation to destroy a brain abnormality.The London Radiosurgical Centre utilises the very latest Leksell GammaPlan Target Series software, a new dimension in treatment planning that features unsurpassed dose-to-target conformation. London Radiosurgical Centre,gamma knife, gamma knife, stereotactic radiosurgery,neurosurgery, brain surgery, Brain tumour, malignant brain tumours, benign brain tumours, acoustic neuroma, brain metastases, arteriovenous malformation, treatment INTRODUCTION The London Radiosurgical Centre uses the lastest Leksell GammaPlan Target Series software for the treatment of patients with malignant or benign brain tumours blood vessel abnormalities , AVMs, acoustic neuroma trigeminal neuralgia and other brain disorders Gamma Knife treatment is one of the important elements of the Centre's services. The experts working at the centre have long experience in practising Stereotactic Radiosurgery . Radiosurgery is a minimally invasive primary approach for the definitive conservative treatment of brain tumours and other brain disorders. Radiosurgery can deliver

23. Rankin Physiotherapy Specializing in the treatment of acoustic neuroma, Bell's palsy, RamsayHunt, Guillain Barre, Vestibulopathy, Neuronitis, Labyrinthitis, vertigo. http://www3.telus.net/rankinphysio

Treating Acoustic Neuroma, Bell's palsy, Ramsay-Hunt, Guillain Barre, Vestibulopathy, Neuronitis, Labyrinthitis, Benign paroxysmal position vertigo...... Rankin Physiotherapy Vancouver, British Columbia goldrank@hotmail.com What is Facial Retraining? Facial Retraining is a technique developed by Dr. Richard Balliet at the University of Wisconsin. It involves isolated muscle work, equalizing tone on both sides of the face, mirror, and therapist feedback. It is effective at minimizing dissymmetry while awaiting nerve regeneration and maximizing facial control of those muscles which are re-innervated. What is Vestibular Rehabilitation? Vestibular Rehabilitation involves a series of exercises using eye, head and body movements designed to enhance adaptation of the vestibular system. Graded and staged movements enhance recovery. Facial Palsy Any facial palsy which results from damage to the peripheral facial nerve can benefit from treatment. Typical conditions treated include diagnoses such as: Acoustic Neuroma Bell's Palsy Ramsay-Hunt Tumours of, or around the facial nerve

24. Web Ring And Patient-based Sites For Acoustic Neuroma About the AN Patient Ring. Welcome to the acoustic neuroma Patient Ring! Member ofthe acoustic neuroma Patient Ring Prev site Next site List Sites Homepage. http://acousticneuromaseattle.org/webring.html

AN Patient Ring and patient-based web sites AN Patient Ring Brain Tumor Ring of Hope Neurofibromatosis webring patient-based web sites ... site table of contents Our The SANG website is committed to reflecting as accurately as we can the different views on AN . While most AN sites make a good faith effort in this regard, there is variation in balance, accuracy, and commitment to facts vs. a determination, subtle or explicit, to promote a specific viewpoint or option. Despite occasional variation in quality in some sites , SANG believes the overriding concern is that patients should hear all viewpoints. Therefore we link to all known sites on AN and try to reflect the reality of differing views (see for example our " pros and cons " section. We would only suggest to people that they keep in mind some basics . There is no risk free option, and no option that can guarantee 100% results in controlling or removing tumors to avoid later recurrence. Do not be swayed by horror stories or anecdotal information: it is far too easy to collect a set of horror stories concerning fractionated stereotactic radiation (FSR), gamma knife (GK), surgery, or observation. The fact is that the great majority of people do fine regardless of which option they pick. Above all, remember that information on the internet is not medical advice.

25. Neuro Main A UK Neurosurgeon's homepage intended for all those seeking information about what neurosurgeons do. Contains information (with some video) on trigeminal neuralgia, acoustic neuroma and disc surgery. http://www.neurosurg.co.uk

26. Text.nlm.nih.gov/nih/cdc/www/87txt.html Similar pages text.nlm.nih.gov/nih/cdc/www/87.html Similar pages acoustic neuroma Index @ Wake Forest Universityacoustic neuroma from the Department of Neurosurgery, Wake Forest UniversitySchool of Medicine, WinstonSalem, North Carolina. http://text.nlm.nih.gov/nih/cdc/www/87txt.html

27. Radiation Oncology - The University Of Texas Health Science Center At San Antoni Radiotherapy at University of Texas HSC (Health Science Center) San Antonio, whcih specializes in cancers of the breast, prostate, lung, acoustic neuroma, and gliobastoma. Web pages list faculty, clinical trials research, appointment and academics. http://www.uthscsa.edu/radiationoncology/

Site map ... Patient resources Location and map Supportive services Wellness Center ... Graduate program Enter a specific word or phrase you are searching for, or the name of a physician, treatment option, etc. Created 08 December 2000. Updated 07 February 2003. Site URL: www.uthscsa.edu/radiationoncology/ The Department of Radiation Oncology, The clinical and research staff have outstanding expertise in the use of different kinds of radiation in the treatment of human tumors, and are readily available to undertake treatment for you or a family member or friend. Patient Resources Clinical Specialties - therapeutic radiation oncology, radiation physics, treatment technologies available Research - radiation biology, current patient trials Faculty - information on our clinical and research faculty members Appointments - phone numbers, how to schedule an appointment, hours, referrals Academics

28. What Is Acoustic Neuroma? To navigate this web site your browser should be java enabled. what isacoustic neuroma? Acoustic advised. How is acoustic neuroma treated? http://www2.fenetre.co.uk/~brianlloyd/whatis.htm

To navigate this web site your browser should be java enabled. what is acoustic neuroma? Acoustic Neuroma also known as 'vestibular schwannoma' is a generally slow growing benign tumour which forms on the vestibular (balance) part of the eighth cranial nerve (acoustic nerve). It is a very rare condition affecting about 1 in 100,000 people per year. Acoustic neuroma is often detected when patients complain of hearing impairment, tinnitus and balance disorders. The detection and diagnosis of acoustic neuroma has improved greatly in recent years with the introduction of sophisticated imaging technology, notably gadolinium enhanced MRI scanning and the trend has been for tumours to be detected earlier. There is an obvious advantage in detecting the tumour earlier while it is smaller. Causes of acoustic neuroma? The causes of acoustic neuroma are unknown, certain genes are suspect but the 'trigger' is unknown. Patients have frequently speculated on the cause of their acoustic neuromas and some have suggested that a "blow on the head" or other injury may have caused the tumour, the most recent idea comes from a patient who travels by air a great deal and wonders if that may be an influence. There appears to be no evidence that these occurances are responsible in any way for the appearance or development of the acoustic neuroma although there are cases on record where the acoustic neuroma has been

29. MEDLINEplus: Acoustic Neuroma Search MEDLINE for recent research articles on • acoustic neuroma. General/Overviewsacoustic neuroma (Mayo Foundation for Medical Education and Research); http://www.nlm.nih.gov/medlineplus/acousticneuroma.html

Skip navigation Other health topics: A B C D ... List of All Topics Acoustic Neuroma Contents of this page: From the NIH General/Overviews Diagnosis/Symptoms Treatment ... Organizations Search MEDLINE for recent research articles on Acoustic Neuroma You may also be interested in these MEDLINEplus related pages: Neurofibromatosis Brain and Nervous System Ear, Nose, and Throat From the National Institutes of Health Vestibular Schwannoma (Acoustic Neuroma) and Neurofibromatosis (National Institute on Deafness and Other Communication Disorders) General/Overviews Acoustic Neuroma (Mayo Foundation for Medical Education and Research) Acoustic Neuroma (Vestibular Disorders Association) Clinical Trials ClinicalTrials.gov: Neuroma, Acoustic (National Institutes of Health) Diagnosis/Symptoms Computed Tomography (CT)-Head (American College of Radiology, Radiological Society of North America) Hearing Problems: Self-Care Flowcharts (American Academy of Family Physicians) MR Imaging (MRI)-Head (American College of Radiology, Radiological Society of North America) Ten Ways To Recognize Hearing Loss (National Institute on Deafness and Other Communication Disorders) Understanding Your Audiogram (American Academy of Audiology) Specific Conditions/Aspects Schwannomatosis (National Neurofibromatosis Foundation) Treatment Acoustic Neuroma (International Radiosurgery Support Association) Gamma-Knife Radiosurgery: Neurosurgery Without a Scalpel (Mayo Foundation for Medical Education and Research) Directories Directory of Organizations (National Institute on Deafness and Other Communication Disorders) - lists organizations that focus on health issues relating to hearing, balance, smell, taste, voice, speech, and language

30. MEDLINEplus Medical Encyclopedia: Acoustic Neuroma acoustic neuroma. not known. However, acoustic neuroma is often linkedwith the genetic disorder neurofibromatosis type 2 (NF2). http://www.nlm.nih.gov/medlineplus/ency/article/000778.htm

Skip navigation Medical Encyclopedia Other encyclopedia topics: A-Ag Ah-Ap Aq-Az B-Bk ... Z Acoustic neuroma Contents of this page: Illustrations Alternative names Definition Causes, incidence, and risk factors ... Calling your health care provider Illustrations Central nervous system Alternative names Return to top Vestibular schwannoma; Tumor - acoustic; Cerebellopontine angle tumor; Angle tumor Definition Return to top An acoustic neuroma is a benign , noncancerous, often slow-growing tumor of the nerve which connects the ear to the brain (8th cranial or auditory) nerve. Causes, incidence, and risk factors Return to top These tumors are thought to arise when there is a defect in a certain tumor suppressor gene, which normally prevents tumors from occurring. The cause of the genetic defect is not known. However, acoustic neuroma is often linked with the genetic disorder neurofibromatosis type 2 Acoustic neuromas are relatively uncommon in general, but they are one of the most common types of brain tumors. They affect approximately 1 out of 100,000 people per year. The tumor is most commonly located at the base of the brain, where the auditory nerve leaves the skull cavity and enters the bony structure of the inner ear.

31. Acoustic Neuroma-The Basic Facts acoustic neuroma. THE BASIC FACTS. UNIVERSITY OF MINNESOTA. WELCOME ! I would liketo extend a warm welcome to you as you visit this website on acoustic neuroma. http://www.med.umn.edu/otol/library/aneuroma/

ACOUSTIC NEUROMA THE BASIC FACTS UNIVERSITY OF MINNESOTA Home Origin/Cause Microscopy Symptoms ... Postoperative WELCOME ! I would like to extend a warm welcome to you as you visit this website on Acoustic Neuroma. You or one of your family members or friends may have been diagnosed with an Acoustic Neuroma. Like any other tumor in the body which requires surgery, the diagnosis of an Acoustic Neuroma can be overwhelming and scary, not just for the patients, but also for their families. The good news is that these tumors are benign and can be surgically removed with a low rate of recurrence-so there is hope for treatment. In my experience, most patients experience shock after being told they have a tumor near the brain that needs to be surgically removed. As a result, information about the course of treatment usually goes unregistered. This website has been developed to provide newly diagnosed Acoustic Neuroma patients with information to help evaluate their treatment options and make an informed decision. However, the final decision should be made only after consultation with your neurotologist or neurosurgeon. I wish you all the very best. Dr. Samuel C. Levine, M.D.

32. Understanding Acoustic Neuroma: Information On Diagnosis, Treatment,, CancerBACU Information on acoustic neuroma written by cancer specialists for patients withacoustic neuroma on all aspects of acoustic neuroma including diagnosis and http://www.cancerbacup.org.uk/info/acousticneuroma.htm

The UK's Leading Cancer Information Service FREEPHONE HELPLINE: 0808 800 1234 Cancer Information Clinical ... donation BRAIN CANCERS - BOOKLET Brain tumours BRAIN CANCERS - FACTSHEETS Acoustic neuroma Astrocytoma CNS lymphoma Ependymoma ... Secondary brain tumours As a charity, we rely on voluntary contributions to provide this information. If you would like to make a donation to assist us in our work, click here Acoustic neuroma The CancerBACUP Factsheet This factsheet provides information about a specific type of tumour called an acoustic neuroma, sometimes referred to as a schwannoma or neurilemoma. The factsheet should ideally be read with CancerBACUP's booklet Understanding brain tumours , which gives more information and puts the factsheet into context. You may also want to discuss it with a nurse or doctor involved in your treatment, or with one of CancerBACUP's Cancer Support Service nurses (ring 020 7613 2121 or Freephone 0808 800 1234). As well as giving specific information CancerBACUP's experienced cancer nurses can provide details of useful organisations throughout the country which can offer help and support to you and your family.

33. Acoustic Neuroma - General Practice Notebook Clinicallyoriented information. http://www.gpnotebook.co.uk/MedwebPage.cfm?ID=1570373632

34. Acoustic Neuroma Diary lot. You see the reason the MRI wasn't accurate is because my acousticneuroma had tentacles growing from it going into my brain. http://www.geocities.com/Heartland/Estates/1005/ANdiary.html

Sorry, your browser doesn't support Java. I have to give all credit for my surviving through surgery to God. It is through prayers and His Grace that I am here today to write this story. These paintings are the works of Danny Hahlbohm. I couldn't decide on just one so enjoy the wonderful paintings. The link to Danny's page is below. This is a picture of me taken June 6,1997. Three days before D day ! Should you suspect you or someone else of having an Acoustic Neuroma, seek professional medical advice. It all started back on March 7, 1997. I went to my family doctor to see why I was losing my hearing. Being that I was only 35 I was concerned. It had been progressively getting worse for 9 to 11 years. After checking me over he couldn't find anything wrong so he sent me to our local ENT. My first appointment was March 31, 1997. Dr. Bland did all of the initial tests and then took me for a hearing test to see if that would tell us something. The test showed that I had hearing loss in my right ear but didn't show why.

35. ACOUSTIC NEUROMA acoustic neuroma. Last edited 2/2003. This material is not meant to substitutefor medical care. DIAGNOSIS OF acoustic neuroma audiogram in acoustic neuroma. http://www.tchain.com/otoneurology/disorders/tumors/acoustic_neuroma.htm

ACOUSTIC NEUROMA Last edited: 2/2003. This material is not meant to substitute for medical care. Please see our Search this site Timothy C. Hain, MD Main Points: 1. Acoustic neuromas are a rare cause of unilateral hearing loss as well as other symptoms related to the ear and brain. 2. The best tests to diagnose acoustic neuroma are audiometry (hearing testing) and MRI scanning of the head with gadolinium contrast. 3. About half of all acoustic neuromas are treated by surgery, about a quarter with radiation, and about a quarter go untreated. Acoustic neuromas, also known as vestibular schwannomas, are non-malignant tumors of the 8th cranial nerve. Most commonly they arise from the covering cells (Schwann cells) of the inferior vestibular nerve (Komatsuzaki and Tsunoda, 2001). They comprise about 6 percent of all intracranial tumors, about 30% of brainstem tumors, and about 85% of tumors in the region of the cerebellopontine angle another 10% are meningiomas. Only about 10 tumors are newly diagnosed each year per million persons in the United States, corresponding to between 2000 and 3000 new cases each year. In patients with hearing asymmetry, it is believed that only about 1 in 1000 has acoustic neuroma (source: NIH). Acoustic neuroma occurs in two forms: a sporadic form and a form associated with an inherited syndrome called neurofibromatosis type II (NF2). About 95 percent of all cases are sporadic. NF2 is rare; there are only several thousand affected individuals in the entire United States, corresponding to about 1 in 40,000 individuals. Roughly 5% of patients with acoustic neuroma have type II neurofibromatosis. There is presently no evidence that radiation from cellular phones causes acoustic neuroma (Muscat et al, 2002).

36. Johns Hopkins Medicine Stereotactic Radiosurgery Patientoriented information on this disorder, including tinnitus, speech discrimination and facial nerve preservation. http://www.med.jhu.edu/radiosurgery/braintumors/acoustic/questions/

Home Site Map Neurology/Neurosurgery Contents : GENERAL INFORMATION About Radiosurgery About Brain Tumors About Gamma Knife ADDITIONAL INFORMATION Acoustic Neuroma Brain AVM Chordoma Craniopharyngioma ... Pituitary Adenoma ABOUT US Our Experts News and Events Glossary FAQs ... Contact Us Welcome! The Johns Hopkins Radiosurgery Group includes radiosurgery specialists committed to providing the highest quality radiosurgery treatment for each patient by utilizing the unique expertise, state of the art technologies, and extensive resources available at Johns Hopkins. travel and accommodation . For information about scheduling an appointment or submitting records, please click here The physicians primarily responsible for the administration of radiosurgery are neurosurgeons and radiation oncologists. In most situations, the treatment is planned and supervised by a neurosurgeon and radiation oncologist working together. Dr. Daniele Rigamonti

37. Acoustic Neuroma / The Family Village Library A B. acoustic neuroma. www.anac.ca/. The acoustic neuromaAssociation of Canada is a patient-headed, peer support group. http://www.familyvillage.wisc.edu/lib_acou.htm

Acoustic Neuroma See Also: Deaf and Hard of Hearing Who to Contact Where to Go to Chat with Others Learn More About It ... Search Google for "Acoustic Neuroma" Who to Contact Acoustic Neuroma Association 600 Peachtree Pkwy, #108 Cumming, GA 30041 770-205-0239 (fax) E-mail: anausa@aol.com Web: http://www.anausa.org/ The Acoustic Neuroma Association was created to provide information and support to patients who have experienced an acoustic neuroma or other benign problem affecting the cranial nerves. It furnishes information on patient rehabilitation to physicians and healthcare personnel, and promotes and supports research on acoustic neuroma and its effects. It also seeks to educate the public regarding symptoms suggestive of acoustic neuroma, thus promoting early diagnosis and successful treatment. The Acoustic Neuroma Association publishes a quarterly newsletter with professionally-authored medical information, provides patients with information dealing with all aspects of acoustic neuroma, and it hosts a national symposium for those affected by acoustic neuroma. Acoustic Neuroma Association of Canada P.O. Box 369

38. Acoustic Neuromas  Acoustic Neuromas Because of the close anatomic proximity of the vestibular nerve (and hence theacoustic neuroma) to the auditory and facial nerves, there compression may http://www.hopkinsmedicine.org/radiosurgery/acoustic.cfm

Home Site Map Neurology/Neurosurgery Contents : GENERAL INFORMATION About Radiosurgery About Brain Tumors About Gamma Knife ADDITIONAL INFORMATION Acoustic Neuroma Brain AVM Chordoma Craniopharyngioma ... Pituitary Adenoma ABOUT US Our Experts News and Events Glossary FAQs ... Contact Us Acoustic Neuromas CONNECT! Join the Acoustic Neuroma Mailing List More information Overview Symptoms Treatment Options Acoustic neuromas (also known as vestibular schwannomas) are benign tumors that arise in the cerebellopontine angle as a result of the growth of the Schwann cells that surround and insulate the vestibular nerve. Acoustic neuromas constitute approximately 6% of intracranial tumors, a relative incidence which has been consistent over many decades. The incidence is approximately 1 per 100,000 persons. The peak age of incidence is between the fourth and seventh decades (30's to 60's). These tumors arise and remain local. There is no extension into the surrounding normal brain, and there is no metastasis (spread) to other parts of the body. Because of the close anatomic proximity of the vestibular nerve (and hence the acoustic neuroma) to the auditory and facial nerves, there compression may result in the presenting symptoms.

39. Acoustic Neuroma Association NSW Australia -Home Page The acoustic neuroma Association NSW Inc is a patient organised information and supportgroup. Welcome to the Home of the acoustic neuroma Asociation NSW Inc. http://www2.tpgi.com.au/users/bcrowe/

Our new Domain Name is:- www.acousticneuroma.com.au Welcome to the Home of the Acoustic Neuroma Asociation NSW Inc. Please say G'day... This page has been visited times since 22 March 1999 Please read the it contains important information

40. Acoustic Neuroma Info acoustic neuroma INFO SOURCES. On Oct radiation procedures? Will yourdoctor be one of them? Sandi Wiggins' acoustic neuroma Resources. http://pages.prodigy.com/awiggins/acoustic.htm

ACOUSTIC NEUROMA INFO SOURCES On Oct.1, 1999, this and other .com pages will be required to change to .net or will be discontinued by Prodigy. The new URL will be: http://pages.prodigy.net/awiggins/fordlist.htm. Please make this correction where you can. Note, the change is simply .com to .net. The following data are presented with the hope that they will be of some use to patients with recently diagnosed acoustic neuromas. The information was gathered at the time of my surgery and in the post-op period. No effort has been made to determine either the accuracy of the information or the quality of service offered. I am not a medically trained person and make no recommendations based on this information. Inclusion on this list does not imply a recommendation nor does non-inclusion imply the opposite. In general this list is based on e-mails directly from recovering patients. I will furnish you with their e-mail addresses upon request. Because of my desire to disseminate as much information as possible this list is being expanded to include AN doctors and hospitals that have come to my attention from sources other than patient e-mails. Such names will be preceded by a No person has used any special influence to be included hereon. E-mails from patients will be reviewed and the information possibly added later.

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