21. The Child With A Long-Term Illness - AACAP Facts For Families # 19 the flu, the child with a chronic illness must cope for not being able to cure theillness. Uncomfortable treatments, and restrictions in diet and activity may http://www.aacap.org/publications/factsfam/illness.htm

T HE C HILD W ITH A L ONG- T ERM I LLNESS No. 19 (Updated 5/99) The child with a serious medical illness is at risk for developing associated emotional problems. Unlike a child with a temporary sickness such as the flu, the child with a chronic illness must cope with knowing that the disease is here to stay and may even get worse. Child and adolescent psychiatrists point out that almost all of these children initially refuse to believe they are ill, and later feel guilt and anger. The young child, unable to understand why the sickness has occurred, may assume it is a punishment for being "bad." He or she may become angry with parents and doctors for not being able to cure the illness. The youngster may react strongly against pampering, teasing, or other attention. Uncomfortable treatments, and restrictions in diet and activity may make the child bitter and withdrawn. To help your child deal with the disease you need to give them honest, accurate, and age appropriate information to help them understand. A teenager with a long-term illness may feel pulled in opposite directions. On the one hand, he or she must take care of the physical problem, requiring dependence on parents and doctors. On the other hand, the adolescent wants to become independent and join his or her friends in various activities. When a teenager with a long-term illness tries to decrease or stop taking the prescribed medication without consulting with the physician, this often shows a normal adolescent desire to take charge of one's own body.

22. PBS - Who Cares: Chronic Illness In America -- Becky Shively WHO CARES chronic illness in America WHO CARES chronic illness inAmerica, does. The diet is made mostly of fruits and vegetables. http://www.pbs.org/fredfriendly/whocares/your_stories/becky_shively.html

Becky Shively Niagara Falls, NY I am a Mom of a PKU (phenylketonuria) child. He was born looking perfectly normal on the outside. I received a call when he was 10 days old that there was a problem and I knew he had PKU. He has a half-sibling from his father's previous marriage with the disorder. The hospital was amazed. They had never heard before of half-siblings having PKU, since both parents have to be carries. What was even more amazing was that my friend of 20 years had a girl four years earlier with severe PKU. I used to say for an extremly rare disease I sure had enough kids with it running around my house. The blood tests that need to be done are the easy part. The kids get used to it and don't usually put up much of a fight. The everyday heartache comes when feeding your child could damage them mentally. With PKU a certain enzyme that digests a specfic part of protein is missing causing it to toxify the brain. Researchers are unsure how a liver defect can cause brain damage, but with PKU it does. The diet is made mostly of fruits and vegetables. Specially made pasta, breads and now cheeses! There is a special formula they need to consume everyday. It is a very time consuming endever. I am constantly boiling pasta or mixing up baked goods. The foods are terribly expensive and hard to get. Insurance pays for my son's diet, but others are not so lucky. Parents know without this food the diet is impossible to maintain a good blood level. It is for those other parents, my girlfriend included, that I started a support group. To find other parents and to unite to help our children "get the basics" namely food.

23. Studying With A Disability Or Chronic Illness or chronic illness also find themselves confronted with additional disabilityor illness-related costs, for example, costs for maintaining a special diet,; http://www.student-affairs.de/beratun/behstudi.htm

Who are we? Studentenwerk organisations Information for students e-mail ... Deutsch S tudying with a disability or chronic illness O ne of the findings of the DSW's (German National Association for Student Affairs) 15th Social Survey showed that 13 % of all students in Germany are either disabled or chronically ill. 2 % of the students are disabled, 11 % are chronically ill. By far the greatest proportion have allergies and respiratory tract illnesses. Besides these, the following illnesses and diseases are responsible for chronic illnesses on the part of students, albeit that these are less widely spread: chronic metabolic disorders, skin diseases, diseases of the internal organs, and psychological disabilities. T his high proportion of disabled and chronically ill students not only underlines the need to give greater consideration than has previously been the case to the circumstances of such students in higher education and the need to adopt appropriate measures to improve the conditions, which, unfortunately, are still inadequate in many areas. U niversity studies will prove to be far less straightforward for chronically ill and disabled students than for their fellow students who do not face serious health problems. For example, the proportion of students who chose to change their degree course (subject) midway is higher. Moreover, disabled or chronically ill students interrupt their studies more often than other students.

24. HEALTH: PARASITES - WHEN, AVOIDING -- Solutions, Cures, REMEDY: CHRONIC Illness child who does not have symptoms of one chronic illness or another. APPEARANCESCAN BE DECEIVING. Over the past 70 years, the North American diet has changed http://www.earthtym.net/parasite-A.htm

Parasites Friend, Foe, or Companion? Why you Don't Know. If you only knew! Finding out the hard way. What does it take to get better? What are Parasites? What a parasite can do. ... Do I Have Parasites? A chart. How you got your parasites. There is no sense in following parasite-ridding practices if you continue to indulge in parasite-attraction practices. While guidelines to a parasite-reduced lifestyle are provided in the next section, some specifics will be mentioned here. EVERY CUBIC CENTIMETER or cubic inch of soil has tens of thousands of parasites. These are in all sizes of "small" and many forms of structure. Without mycorrhizal fungi, trees, particularly in the tropical rainforests, would practically starve. These fungi digest the decomposing litter on and in the soil, and, through their attachment to the roots of the trees ... funnel concentrated nutrients into the tree. No fungi, no forest. COMPARE THIS "ECOLOGY" to that of a human. A human living in a country in which dairy products are relatively common acquires thousands of parasites from its mother at birth or from "cultured" dairy foods thereafter - yoghurt, cheeses, .... These grow into populations in the billions in the intestines. When we drink cow's milk, the lactobacilli parasites digest the lactose and produce nutrients which the human can obtain nutrients from. If the human takes antibiotics, either pharmaceutical or strong herbal preparation, the parasites are killed. Curry is an herbal example. The action is much the same as a fire sweeping through the forest.

25. Nutritional Suggestions For The ILL Even though fruit seems to be the perfect food for man, a fruit diet or a longfast can destroy the body in extreme chronic illness because too much waste http://www.cancer-info.com/diet-ill.htm

Nutritional Suggestions For the ILL Diet is very important when you are battling a serious illness. This diet works wonderfully well along side of essiac MILD FOOD DIET Let us define mild food and see why this is the basis of all healing. Fruits are digested and removed from the body in twenty to thirty minutes because they are glucose sugar or simple sugar. Vegetables (not having heavy starch) will digest within forty-five to sixty minutes, when used alone. All vegetables have a certain amount of starch and are not as easily eliminated from the body as fruits. Vegetables, however, digest faster than the more concentrated foods such as starch, meat, and complex sugars. Concentrated foods cause the body to work harder and for a longer period of time in the process of digestion, requiring from four to six hours. Pork requires nine hours. It is also logical to use mild food in case of chronic or acute illness, since an adequate amount of hormones, hydrochloric acid, and enzymes are required to bring the concentrated foods into a state where they can be used by the body during this four to six hour process of digestion. Most people who are chronically sick do not have an adequate hormone balance so as to accurately make these changes. With the inability to make this change accurately, there is then an increase in the toxic waste by virtue of the unutilized foods. Fruit and honey are already glucose sugar and do not need much change. Vegetables have a small amount of starch but still do not require as much body effort in the process of digestion; they also have a cleansing and lubricating action, making them a suitable food for building as well as cleansing, with a minimum of strain on body organs.

26. Books Sick and Tired of Feeling Sick and Tired Living with Invisible chronic illness. TheBrain Chemistry diet Diseases of the Ear A Pocket Atlas. http://couponmaniacom.homestead.com/Books.html

All of these books can be found at Amazon.com If you click on the title of the book it will take you right to it and give you a more detailed description.. Feeling Dizzy Understanding and Treating Vertigo, Dizziness and Other Balance Disorders.. The Tinnitus Handbook A Self Help Guide Get The Salt Out 501 simple ways to eliminate salt from your diet. This is important for anyone with an inner ear disorder.. Coping With Prednisone: (*and Other Cortisone-Related Medicines): It May Work Miracles, but How Do You Handle the Side Effects Panic Free : Eliminate Anxiety And Panic Attacks Without Drugs. You Are Not Your Illness : Seven Principles for Meeting the Challenge Thriving With Your Autoimmune Disorder : A Woman's Mind-Body Guide Say Goodbye to Illness Winning the War Against Immune Disorders and Allergies: A Drug Free Cure for Allergies The Chronic Illness Experience : Embracing the Imperfect Life Menieres And It's Management Menieres And What You Need To Know Meniere's Disease. An information book for people living with Meniere's Disease. Controversial Aspects of Meniere's Disease Stop Your Tinnitus : Causes, Preventatives, and Alternatives

27. SynergyHN-home Page from cancer, lupus and AIDS, to mental illness and substance Lyme Disease and itsRelation to chronic Fatigue Syndrome Low Carbohydrate diet (Note R. Paul St. http://members.aol.com/SynergyHN/

Chronic Illness Support and Research Association (CISRA): Synergy Health Newsletter keywords: fibromyalgia, guaifenesin, salicylates, chronic fatigue syndrome (CFS), CFIDS, hypoglycemia, carbohydrate intolerance, immune sensitivities, food allergy, food sensitivity, food intolerance, environmental medicine, multiple chemical sensitivity (MCS), autoimmune illnesses PO Box 70166, Pasadena, CA 91117-7166, web site: http://members.aol.com/SynergyHN/index.html e-mail: SynergyHN@aol.com or jcwat101@aol.com Purpose: We feel that people with chronic illnesses have much in common and we would all benefit from being linked in some way. Therefore, we plan to contact support groups for people with many types of chronic or long-term illnesses or conditions. We begin with an emphasis on innovative approaches to chronic fatigue syndrome and fibromyalgia, but eventually will cover topics ranging from everything from cancer, lupus and AIDS, to mental illness and substance abuse. Synergy occurs when a dynamic process of cooperation and interaction leads to results that would not have occurred without that process. The name Synergy reflects the process by which we hope to accomplish our goals for the chronically ill: to inspire hope, to educate about treatments, to provide resources, and to empower patients and their families to obtain the most beneficial treatments for themselves and to promote the research that will benefit all. For more information on CISRA, the newsletter and membership, click on:

28. KS LIESTER: Special Diet/Wellness Counselor, Writer, Consumer Acti... diet/Wellness Counselor, Writer and consumer health activist who works with childrenand adults to regain lifequality lost to the ravages of chronic illness. http://members.aol.com/KendraSLiester/about.html

htmlAdWH('7008213', '120', '30'); htmlAdWH('7004798', '234', '60'); Main Create Edit Help (C), 1995, 1996, 1997, 1998, 1999, 2000, 2001, 2002, 2003 Good Health HOME K.S. (Kendra) Liester is a Special Diet/Wellness Counselor, Writer and consumer health activist who works with children and adults to regain life-quality lost to the ravages of chronic illness. With over 20 years first-hand experience in a variety of once severe and often debilitating chronic illnesses herself (fibromyalgia syndrome, multiple chemical sensitivity, allergies, clinical depression), and through the research in and counsel of so many others with similar conditions, Kendra has gained a unique – mind, body, spirit – approach toward treating today's chronic health issues. Most interesting, but not the only focus of her work, Kendra believes that if all individuals could productively embrace their natural potential and talents, using these talents to follow their waking dreams , chronic illness could be avoided, if not cured altogether. By respecting and embracing her own "fragile," ultra-sensitive and what was once thought of as a curse-of-poor-health qualities, Kendra is able to deeply connect with individuals and their environments, actually experiencing or

29. Coping With Autoimmunity - AARDA of nutrition and healthy food preparation puts you in control of your diet and,in chronic illness often has so many ups and downs that it can be emotionally http://www.aarda.org/coping_art.html

American Autoimmune Related Diseases Association InFocus Article This is a selected article from one of the past issues of "InFocus" Newsletter. The American Autoimmune Related Diseases Association, Inc. publishes "InFocus" to provide its members and subscribers with current information about autoimmune diseases and related topics as well as timely reports about AARDA. "InFocus" is published four times per year. Subscriptions are available for a donation of $24.00 (U.S) or any amount. To receive a copy of the current newsletter plus four more issues click on the subscribe button. The American Autoimmune Related Diseases Association, Inc. (AARDA) is a Tax exempt 501 C(3) qualifying charitable organization. To find out more, please click on "About AARDA." When you are diagnosed with a serious chronic autoimmune disease, it is normal to question your well-being and your mental ability to cope with the life changes that are part of living successfully-with any serious chronic illness. A few basic suggestions are crucial for you to consider in order for you to manage your illness better.

30. Obesity - There IS A Diet That Works! or a loved one, friend, or relative is afflicted with cancer, heart disease, AIDS,or other chronic illness, click here. Obesity There IS a diet That Works! http://www.cqs.com/obesity.htm

If you or a loved one, friend, or relative is afflicted with cancer, heart disease, AIDS, or other chronic illness, click here. Consulting Services Natural Therapy for Cancer Natural Therapy for Cardiovascular Disease ... Contact Obesity - There IS a Diet That Works! Overweight seems to be a national plague. Diets, books on dieting, dieting organizations, and exhortations from doctors and health professional do not seem to be enough. Millions of people have turned to dangerous prescription drugs or fad diets to stave off their hunger. What is really going on here? The meat industry and the fast-food restaurants have more to do with America's weight problem than anything else. Each day we are barraged with powerful TV and radio ads promoting the idea that it's perfectly OK to have bacon and eggs for breakfast, hamburgers and french fries for lunch, and fried chicken and french fries for supper. A high-fat diet such as this causes subtle changes in metabolism. The body's ability to burn fat is compromised. Levels of insulin, which "demobilizes" fat metabolism, increase, while insulin "receptors" in our cells become less effective or shut down entirely. In a downward spiral, the body collects more fat, and the fat-burning mechanism is further compromised. Combined with a profound deficiency in vitamin C (most Americans get about 1% of the vitamin C they need for proper metabolism), heart disease and diabetes are next in line.

31. Fen/Phen - Deadly Diet Combination or a loved one, friend, or relative is afflicted with cancer, heart disease, AIDS,or other chronic illness, click here. Fen/Phen The Deadly diet Combination http://www.cqs.com/fenphen.htm

If you or a loved one, friend, or relative is afflicted with cancer, heart disease, AIDS, or other chronic illness, click here. Consulting Services Natural Therapy for Cancer Natural Therapy for Cardiovascular Disease ... Contact Fen/Phen - The Deadly Diet Combination (This page is under construction, as more information about the drug recall unfolds) For several years, doctors all over the U.S. have been quietly recommending two diet drugs - Dexfenfluramine (Redux) and Phentermine - to millions of people. According to latest statistics, more than 18 million people have used the drugs, in a combination called fen/phen. Used in combination, they reduced the craving for food, making dieting easier. But when you disrupt sensitive chemical messaging systems in the human body, other more serious disruptions may occur. There is now evidence that the drug combination is deadly. On May 5, 1997, the parents of a 30-year-old Quincy, Mass. woman who used the combination, and subsequently died, sued the manufacturers of the drugs. The woman, a bride-to-be who used the combination to lose weight for her wedding day, died after taking the drugs for a mere 24 days. A study in August, 1996 reported in the New England Journal of Medicine that Fenfluramine caused "primary pulmonary hypertension," contricting of lung blood vessels, causing overtaxing of heart muscles. But the FDA did not act to stop the sale of the drug. In July, 1997, researchers at the Mayo Clinic reported finding a large percentage of fen/phen users had developed heart valve defects. The FDA still did not act. Finally, in September, the manufacturers of Fenfluramine voluntarily withdrew the drug. Now there are possibly millions of people who have heart valve defects.

32. 7 - Chronic Illness Breakthrough - New Research From British Allergy Foundation. chronic illness breakthrough New research from British Allergy Foundation. fromtheir symptoms as a result of eliminating problem foods from their diet. http://www.allergy.co.uk/news/7.html

Chronic illness breakthrough - New research from British Allergy Foundation. A new independent study conducted by the Department of Health Studies at the University of York, has verified the 2500 patient study by York Nutritional Laboratory. The laboratory claims that patients find reduction from their symptoms as a result of eliminating problem foods from their diet. The University also found that the reduction in symptoms was long term for over 70% of those patients who had reported benefit by changing their diet. The laboratory claims this could save the NHS many hundreds of £ millions each year in addition to improving the quality of life for many millions of food intolerance sufferers. The British Allergy Foundation (who estimate that around 45% of the population suffer from food intolerance problems) commissioned this study to examine the usefulness of York Nutritional Laboratory's test for sufferers from chronic illnesses, such as eczema, irritable bowel syndrome, asthma, arthritis and migraine. The laboratory research showed that over three quarters of patients had reported significant improvement in their health after adhering to the recommendations of their food intolerance test.

33. Chronic Illness Research At ORI group is to help people prevent and manage chronic and severe illness by changing Ongoingstudies include a program for changing diet, exercise, stress http://www.ori.org/chronicillness.html

Return to Research Areas at ORI The mission of the chronic illness research group is to help people prevent and manage chronic and severe illness by changing their health behavior. Researchers have developed interventions for use in doctors' offices, worksites, community settings, and the home for illnesses such as diabetes, coronary heart disease, arthritis, and breast cancer. They try particularly hard to reach people who are medically underserved and at high risk for disease. Ongoing studies include a program for changing diet, exercise, stress, and smoking behaviors in women at risk for coronary heart disease, and a project to provide support for diabetes management over the Internet. Newly funded projects include an evaluation of a practical computer-assisted behavior change intervention to facilitate dietary and physical activity practices and to help patients and providers to engage in preventive practices for diabetes; a project aimed at understanding the link between stress and breast cancer; and an evaluation of alcohol server training as a prevention method for Fetal Alcohol Syndrome (FAS). Grant Titles Alcohol Server Education as a FAS Prevention Method (FAS) Jack Dresser Is Breast Cancer Stage of Disease Influenced by Stress?

34. Norton Books - Browse By Subject: Medical/Health/Diet Tired of Feeling Sick and Tired Living with Invisible chronic illness, Second Edition; MartinKatahn, Ph.D., The Cancer Prevention Good Health diet A Complete http://www.wwnorton.com/subject/medical.htm

W.W. Norton General Books by Subject Medical/Health/Diet Return to Browse by Subject Index Norton General Books Home Medical/Health/Diet Marcia Angell, M.D., Science on Trial: The Clash of Medical Evidence and the Law in the Breast Implant Case Marianne Apostolides, Inner Hunger Marlene Boskind-White, Bulimia/Anorexia: The Binge/Purge Cycle and Self-Starvation Jane Brody, Jane Brody's Cold and Flu Fighter Deb Butterfield, Showdown with Diabetes Rafael Campo, The Healing Art: A Doctor's Black Bag of Poetry Norman Cousins, Anatomy of an Illness as Perceived by the Patient: Reflections on Healing and Regeneration Rafael Campo, The Desire to Heal Barrie R. Cassileth, Ph.D., The Alternative Medicine Handbook Donna Cohen, The Loss of Self: A Family Resource for the Care of Alzheimer's Disease and Related Disorders I. S. Cooper, M.D., The Victim Is Always the Same Menopause: A Guide for Women and Those Who Love Them Richard DeGrandpre, Ritalin Nation: Rapid-Fire Culture and the Transformation of Human Consciousness Robert S. Desowitz, The Malaria Capers Paul J. Donoghue

35. Tiscali - Medicdirect Vegetarian diet for Babies and Children, Vegetarian diet for Infants. Vegetariandiets, Weight Reducing diets. Wheat Free diets. chronic illness, GM Foods Helping http://tiscali.medicdirect.co.uk/diet/default.asp

HOME Email My Account Forums ... Travel serveAd("LIFESTYLE.MEDICDIRECT"); HEALTH NEW AGE FASHION AGONY AUNT SEARCH MEDICDIRECT Search on any health matter..... Additive Free Diets Bland Diet Cancer - Preventative Diet Cholesterol Lowering Diet ... CONTACT US servePixl("LIFESTYLE.MEDICDIRECT");

36. Chronic Illness - Consciously Pacing Your Days Is your doctor recommending exercise or a better diet? Make time to carefor your health. With chronic illness we don't fit into that mold. http://www.womenfolk.com/transcend/pacing.htm

Transcending Chronic Illness consciously pacing your days learning to slow down and live fully within your limitations We live in a stressful high speed culture. Employers expect top intensity of production out of their workers. Employees put up with this pressure because they want the money they are earning to buy those things they feel they've got to own. Even our children tend to be involved in too many activities. Many kids barely have time for home and family. Once we know our health is threatened we began to realize we must start taking better care of ourselves; quite a challenge in this frantic environment. It's not just a matter of outside pressures, we have internalized impossible expectations for ourselves as well. Many chronic disabilities come on gradually. Perhaps you have known for some time that things aren't right but you've ignored the warnings. Often it takes a frightening low before we are jarred into realizing we must make changes. Once we know how serious our health problems are we need to rethink how we are going to spend our days. We simply cannot continue our catapult toward destruction. I suggest sitting back and looking at your typical day. Write down the things that must be done and those that could be dropped. Then consider ways the "must do" items could be done by someone else. Do you have family members who could help out? Is it possible you could cut back on work hours if you are still able to work? Keep this list on hand then look back at it in a few days. Perhaps you will find you can let go of even more or you might discover creative ways to make some tasks easier. Be patient with yourself, it takes time to think this through and perseverance to carry it out.

37. GMTV Your Health - Powered By Medicdirect.co.uk Vegetarian diet for Babies and Children, Vegetarian diet for Infants. Vegetariandiets, Weight Reducing diets. Wheat Free diets. Nutrition, chronic illness, GM Foods http://gmtv.medicdirect.co.uk/diet/default.asp?showcheck=8

38. Reach Out: Factsheet: Chronic Illness changes to your diet; managing your alcohol use. There the longterm impact of theillness to consider Living with a chronic illness can be frustrating, monotonous http://text.reachout.com.au/visible/factsheet/chronill_20010201.html

Reach Out: Factsheet Chronic illness What is chronic illness? A chronic illness is the name of a group of illnesses that are permanent or last a long time. Examples of chronic illness include: allergies arthritis asthma cancer crohn's disease cystic fibrosis diabetes epilepsy haemophilia coeliac disease multiple sclerosis lupus Each condition has a different experience. It may be that the illness slowly gets worse over time, causes permanent changes to the body or it may finally go away. Chronic illness may effect your quality of life and management of the illness can minimise the effect it will have. Living with a chronic illness It is not uncommon to feel overwhelmed when you are first diagnosed with a chronic condition. It may be the first time that you have had to think seriously about your health and about the future. Chronic illnesses may also require changes to your lifestyle by: introducing regular medication and/or monitoring of your body changes to your diet managing your alcohol use There may also be the long-term impact of the illness to consider. It can be a big adjustment to make. Living with a chronic illness can be frustrating, monotonous, stressful and depressing. It is not unusual to be frustrated by your illness and want to ignore it or rebel against it. If you are feeling this way it may be helpful to speak to your local doctor, a community health worker, counsellor or nurse. The

39. Browse By Subject - Health Breast Care; Breathing; Cancer. Caregiving; chronic illness; Cosmetic Surgery; Cosmetics;Dental Care; Diabetes; diet; Disability; Epilepsy; Environment Hazards; Exercise http://www.aaabooksearch.com/subjecthealth.aspx

Search: Title Author ISBN Keyword Abortion Acupuncture Aerobics Aging ... Yoga Search: Title Author ISBN Keyword Home Contact Us FAQ legal notice

40. Chronic Illness Schoolhouse Special Needs and Gifted Education chronic illness. Epilepsy Foundationof America http//www.efa.org/; Food and diet from the Children with http://teacherpathfinder.org/School/Subjects/SpecEd/chronic.html

Schoolhouse Special Needs and Gifted Education Chronic Illness Resources: Ask the Diabetes Team from the Children with Diabetes On-line Community http://www.childrenwithdiabetes.com/d_0d_000.htm The Children with Diabetes On-line Community http://www.childrenwithdiabetes.com/ Cystic Fibrosis Foundation http://www.cff.org/ The Diabetes Mall from Diabetes Net http://www.diabetesnet.com/ Epilepsy and Seizure Disorder Resources from Family Village http://www.familyvillage.wisc.edu/lib_epil.htm Epilepsy Fact Sheet from the Family Caregiver Alliance http://www.caregiver.org/factsheets/epilepsy.html Epilepsy Foundation of America http://www.efa.org/ Food and Diet from the Children with Diabetes On-line Community http://www.castleweb.com/diabetes/d_08_000.htm Nutritional and Metabolic Diseases Information from the Karolinska Institute, Sweden http://www.mic.ki.se/Diseases/c18.html We appreciate your comments! Send them to Project Director Dianne Eash, deash@aol.com

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